Well! As noted in the News section as well, today's "cheque presentation" was fairly stunning ... and produced a staggering amount of money! Which put us well over the target amount required for the Sensory Room Project to get underway! In all honesty; I was a bit overwhelmed by the amount raised! It's just so amazing to think that two people - who didn't even know us a few months ago - got on their bikes and cycled the entire length of the UK, to help us raise money for Alyssa's special padded Sensory Room!!! AND they are just lovely, genuine down-to-earth guys who wanted to challenge themselves ... while raising money for a worthy cause at the same time. We are very grateful that they chose Alyssa to be their cause! :-)
The housing association wrote out to me at the beginning of the week to say that their part of the work needed (the actual building changes which need to be done before the sensory guys can do anything) will be done in the next week or so. They are aiming to have everything (including the new air con / heating system installed) by the 25th October, so they should be making an appearance very shortly. Once that's done, I can contact Sensory Plus again and literally just book a date for it all to go ahead. They will be able to fit the padding and special lighting equipment in one day, or two days maximum so it shouldn't be too much longer before Alyssa has her very own Sensory Room. I can't wait to see her little face when the spare room is transormed from a basic 4-walled area into a padded lighting haven! :-)
Thanks to all who have helped us reach this goal. The money which is leftover once the Sensory Room is built (and that which is raised next week at the Bring and Buy Sale) will go in her fund for the next New York trip, scheduled for some point next year. I am hoping - dependant on the date picked for it - to attend the next HSAN conference held by Dr Axelrod, and will see her while there so that was going to be our next fundraising project anyway. We will now be ahead in terms of the amount required for that!
Welcome to Alyssa's blog ...
- Alyssa's Mum
- My name is Moira, and I hope to share with you what my daughter's life has been like so far ... so you can all truly understand and appreciate the gift of pain, which we take very much for granted! Alyssa does not feel "peripheral" pain, which means she does not feel pain anywhere other than internally. This has led to many unintentional injuries and self-mutilation. My aim is to not only find others like Alyssa, and help those who may be going through what we are, as well as raising awareness about this condition, and how feeling pain is actually a GOOD thing! I am thankfully now part of a support group run on FB which is an amazing group of people, who all have varying types of experience with pain insensitivity. I can be contacted directly via understandingalyssa@hotmail.co.uk
No comments:
Post a Comment